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Gestionnaire de projet - Thérapie Génétique (contrat)

26 août 2019
Industries Soins de santé, Assistance sociale
Catégories Gestion de Projets, Analyse d'Affaires, Santé, Médical, Ingénierie, Pharma, Biotech, Sciences, R&D, Programmation, Développement, Projet, Gestion de projet, Planification, Affaires scientifiques et réglementaires, Données cliniques, Statistiques, Biostatistiques, Gestion de projet, Information médicale et pharmaceutique, Recherche et développement, Ressources humaines, Formation, Santé, Sécurité, Environnement, Recherches clinique, Médecins, Ingénierie, Santé, Médical, Gestion de projets, Analyse d'affaires, Pharma, Biotech, Sciences, R&D
Montreal, QC

***Description in English only / Available in French upon request***

contract 1 yr -- full-time; renewal probable

MUST BE entitled (valid work permit) to live & work in Canada 


The World Federation of Hemophilia (WFH - http://www.wfh.org) is an international not-for-profit organization that provides global leadership to improve and sustain care for people with inherited bleeding disorders, including hemophilia, von Willebrand disease, rare factor deficiencies, and inherited platelet disorders. Established in 1963, the WFH works with member organizations in 140 countries as well as through a network of international volunteers and healthcare providers to achieve our vision of "Treatment For All" around the world.

Reporting to:            DirectorResearch & Public Policy

Location:                   WFH Headquarters, Montreal (downtown)



Reporting to the Director of Research and Public Policy, the Gene Therapy Program Manager  (bleeding disorders) – contract 1 yr (renewable) is responsible for managing and contributing to the development of all aspects of the WFH Gene Therapy Program, including the WFH World Hemophilia Gene Therapy Registry, the WFH Gene Therapy Round Table, and future organizational initiatives in gene therapy.



  • Lead and develop WFH expertise in the area of gene therapy for hemophilia
    • Attend relevant international meetings.
    • Closely follow all gene therapy in hemophilia clinical trials and their regulatory status. Develop a dissemination strategy for updating community on a regular basis (WFH website; social media).
    • Promote WFH activities in gene therapy.
    • Advocate for improved access to gene therapy around the world.
    • Be familiar with the WFH Education strategy in gene therapy.
  • Manage the WFH Gene Therapy Registry
    • Work with the World Hemophilia Gene Therapy Registry (WHGTR) Steering Committee to develop the registry, the minimal data set and implementation plan. 
    • Identify and work with the database provider to develop the WHGTR database.
    • Contribute expertise in the development of the case report form(s) and database(s).
    • Site identification, outreach and enrollment of HTCs into the WHGTR.
    • Provide training and support to HTCs, including the development of training materials and webinars.
    • Develop tracking systems and evaluation tools to monitor progress and key milestones of the registry; adhere to overall timelines.
    • Coordinate the data quality activities for the WHGTR.
    • Coordinate data reporting activities for the WHGTR (Annual reports).
    • Ensure inclusion and promotion of the WHGTR at international meetings, conferences.
    • Develop promotional tools for the WHGTR (i.e., data dashboard) and coordinate all marketing and promotional activities of the WHGTR.
    • Coordinate all WHGTR SC calls.
  • Manage the WFH Gene Therapy Round Table meetings.
    • With Director and the WFH GTRT program committee, develop the program for GTRT 2020 and all subsequent meetings.
    • Invite identified speakers.
    • Plan and coordinate all WFH activities surrounding the GTRT (ie., surveys, consensus, manuscripts, etc).
    • Work with the Congress department on the planning and logistics for the meeting.
    • Plan and coordinate regular program committee meetings.



  • Graduate degree in in health policy, public health, epidemiology, or related field
  • Minimum 7 years of relevant work experience in health program management / research development in the non-profit or public sector (preferred); international organization or world healthcare setting – an asset


  • Experience in database design, maintenance, query; demonstrated understanding of the principles of data collection, preferably in an international context
  • Background in developing & facilitating research program-related training/workshops


  • Highly motivated and efficient individual
  • Ability to think critically, resourcefuladept at taking initiative and following through, solving problems effectively; excels in a fast-paced, ambiguous/changing environment


  • Strong interpersonal, communication and presentation skills; ability to work well with volunteers working in diverse cultures and countries as part of an international team
  • Ability to form alliances easily, work &@JW_STRONG_BEGIN@# collaborate well in a team environment; equally autonomousself-motivated


  • Ability to balance, prioritize multiple tasks, work on projects simultaneously; excellent time program management skills (budgeting, reporting)


  • Mastery of MS Officehigh level functioning with Excel or similar database
  • Superior oral and written communication skills in English (main language of work); working knowledge of French, Spanish, and/or other international language(s) – preferred
  • Willingness and flexibility to undertake international travel
  • Entitled to live & work in Quebec, Canada


Salary will be commensurate with background and experience.


Please send in confidence an English resume & motivation letter IMMEDIATELY to:

E: ***********.**********@***.***              Fx: +1 514.875.8916

The World Federation of Hemophilia Fédération mondiale de l'hémophilie http://www.wfh.org

1200 - 1425, boulevard René-Lévesque ouest  Montréal, Qc H3G 1T7 

Facebook: https://www.facebook.com/wfhemophilia

Twitter: https://twitter.com/wfhemophilia

 LinkedIn: https://www.linkedin.com/company/world-federation-of-hemophilia

YouTube: https://www.youtube.com/user/WFHcommunications  

We thank all candidates for their interest, however only short-listed candidates will be contacted.  Une version française de l'affichage est disponible selon la demande.

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